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Rules around releasing donor information

The law around releasing a donor’s personal information to people conceived from their donation changed in April 2005. Understand exactly what they can find out about you according to when you made your donation.

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If you donated after 1 April 2005

If you donated after 1 April 2005, people conceived from your donation will be able to find out the following information when they reach 16 and 18 years of age. This is information you will have been asked to give at the time of your donation.

Aged 16:

  • Your physical description (height, weight, eye, hair and skin colour).
  • The year and country of your birth.  
  • Your and your parent(s) ethnicity.  
  • Whether you had any children at the time of donation, how many and their gender.  
  • Your marital status.  
  • Any relevant personal and family medical history.  
  • Any additional information you may have provided such as your job, religion, skills, interests, reasons for donating, a goodwill message and a personal description (if you wrote one). We will remove any information that could reveal your identity.  

 

The parent(s) of a donor-conceived person can also ask us for this information any point after the birth of their child(ren).

Aged 18:

  • your full name (now and at birth)
  • your date and town of birth
  • the most recent address we have for you
  • any other information we may have previously removed because it would have revealed your identity.

The parent(s) of a donor-conceived person can never access this information.

We’ll try to let you know before we release the information - that’s why it’s so important you keep your contact details up to date with us. We’ll talk you through the next steps, things we suggest you think about at this time and offer you support through our free and confidential support and intermediary service.

Read more on preparing for possible contact from someone conceived from your donation.

If you donated between 1 August 1991 – 31 March 2005

Anyone conceived from your donation at a clinic licensed by us between 1 August 1991 and 31 March 2005 has a legal right to find out about their genetic origins. They can’t, however, get any information that would identify you such as your name or address.

At 16 years of age, anyone conceived from your donation can find out information you gave at the time of your donation, which includes:

  • your physical description (height, weight, eye and hair colour) 
  • the year and country of your birth 
  • your ethnicity 
  • whether you had any children at the time of donation 
  • any additional non-identifying information you chose to supply, such as your job, religion, interests and a brief self-description.

The parent(s) of a donor-conceived person can also ask us for this information at any point after the birth of their child(ren).

Person working on a laptop in a cafe

If you donated before 1 April 2005, none of your personal information will be shared with people conceived from your donation

Could my donation still have been used anonymously after 31 March 2005?

We gave clinics a transitional period whereby anonymous donations made before 1 April 2005 could still be allowed for use in treatment up until 31 March 2006, after which they could not be used in treatment except in certain exceptional circumstances. These include:

  • Where a family wished to create a sibling for their existing child(ren) using the same donor.
  • Where any stored embryos were created using sperm/eggs from an anonymous donor together with the sperm/eggs of a recipient. In this case the embryo could still be transferred to the recipient after 31 March 2006.
Books lined up on a shelf in a library

We don't hold any information on treatments before 1 August 1991

If you donated before 1 August 1991

If you donated before 1 August 1991, anyone conceived from your donation will be unable to find out any information about you through official channels.

This is because we were only set up on 1 August 1991, which means we hold no record of any fertility treatments or babies conceived from treatment before then on our secure fertility treatment database – the HFEA Register. 

If you would like to try to find out if your donation(s) were successful you can:

  • Contact the clinic you donated at (if it’s still open). In some cases the clinic may still hold your records.

Search for a clinic

  • Join the Donor Conceived Register, which tries to link people conceived before August 1991 with their donor (mainly by DNA). If there’s a match you can contact each other if you’re both happy to do so.

How can I remove my anonymity?

Some donors want to make it possible for any people conceived from their donation to discover as much about their origins as possible.

If you’d like to give the people conceived from your donation the ability to find out more about you when they’re 18, you’ll need to remove your anonymity. 

Remove your donor anonymity

Why are donors no longer automatically anonymous?

Before the law was changed in 2005, we consulted widely with donor-conceived people and donors about how donor anonymity should work. We found there was a strong desire on both sides to leave the door open to potential contact if both parties wanted that.

We recognise that the prospect of being contacted by someone conceived from your donation can give rise to a lot of complex emotions. That’s why we introduced a free 3-year pilot support service for donors in June 2015.

We also give donor-conceived people the option of having a support worker on hand to act as an intermediary if they’d like to make contact with you.

Find out more about our free, confidential support and intermediary service

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Review date: 5 June 2019