Analyse our data
The HFEA holds a vast amount of information about fertility treatments in the UK.
We hold this information on the HFEA Register which was set up by legislation and is the world’s largest national dataset about:
- donor treatments and
- the storage of embryos, eggs and sperm.
The new HFE Act 2008 allows us to make this information more accessible; we have found ways of going beyond what is required by statute. We are committed to being a proactive information provider to those interested in the UK fertility sector.
Review of legislation gives greater access
One of the main aims of the review of the 1990 legislation, which concluded in 2008, was to enhance the way the HFEA’s Register should be opened up for use in high quality research.
We were supportive of these moves and are committed to being a good research partner to those with a legitimate interest in our Register, while also being mindful of the highly sensitive and confidential nature of the data we hold.
Accessing our data
Find out what data you can access, including patient identifying information, according to the type of research project being carried out.
Find out the steps you need to take to access patient identifying data from the HFEA, and the criteria your research project has to meet.
Recognised research institutions can request to access HFEA Register data for non-medical research projects. When you apply, you will be asked to describe your proposed research project and explain why you require to access patient-identifying information.
The anonymised Register allows researchers to access a large and rich data set, but one that does not identify any patients, or children born as a result of treatment.
Good research, good reasons
Good quality research with our Register information can:
- improve our understanding of what factors influence the efficacy of fertility treatments, leading to better practice and more informed patient choice
- increase our understanding of the short, medium and long term outcomes of fertility treatments for patients and their children, leading to safer treatments and better strategies for handling risks
- inform the decision making of those who regulate or influence the practices of the fertility sector, like the HFEA itself, professional bodies, other regulators or Parliament.
Page last updated: 26 September 2009