ACeBabes
ACeBabes offers support on pregnancy following fertility treatment, multiple births, donor conception for donors and recipients, decisions surrounding frozen embryos, trying for siblings, deciding to end treatment, and telling children how they were conceived. Provides a quarterly newsletter, sub-group news sheets, meetings, personal contacts for specific conditionsand an interactive website.
Tel: 0845 838 1593
Website: http://www.acebabes.co.uk/
British Infertility Counselling Association (BICA)
BICA aims to promote high quality, accessible counselling services for those with fertility problems. It offers information to patients seeking details of counsellors specialising in infertility.
Tel: 01372 451 626
Website: http://www.bica.net/
Cancerbacup
This charity offers independent, accessible information, practical advice and support for people affected by cancer. Its range of information booklets includes how cancer treatments can affect fertility (and the future fertility of teenage patients).
Tel: 0808 800 1234
Website: http://www.cancerbacup.org.uk/
Child Bereavement Trust
This charity's philosophy is based on learning from families who have experienced the death of a baby or child or from children who have experienced the death of their mother, father, brother or sister.
Tel: 0845 357 1000
Website: http://www.childbereavement.org.uk/
Childlessness Overcome Through Surrogacy (COTS)
The main objective of COTS is to pass on collective experience to surrogates and would-be parents, helping them to understand the implications of surrogacy.
Tel: 0844 414 0181
Website: http://www.surrogacy.org.uk/
Daisy Network Premature Menopause Support Group
Daisy Network provides support and information for women who have gone through an early menopause. Members can speak to others who have been
through egg donation cycles, both successfully and unsuccessfully. Also publishes factsheets and a quarterly newsletter and has an annual open day.
Website: http://www.daisynetwork.org.uk/
Donor Conception Network (DC Network)
DC Network provides contact and support for people who have children conceived, or who plan family creation, using donated gametes through donor insemination (DI) and IVF with donor sperm or donated eggs. Also provides support for adult offspring of donor conception.
Tel: 020 8245 4369
Website: http://www.dcnetwork.org/
Endometriosis UK
The Society provides a helpline, local groups and clubs, a newsletter and other publications, workshops and conferences.
Tel: 0808 808 2227
Website: http://www.endometriosis-uk.org/
Fertility Friends.co.uk
A meeting place for couples in the UK fertility community. Our aim is to help people through the difficult process of assisted conception by sharing thoughts, experiences and knowledge with others. Our Message board system and Chat room enables people to interact anonymously. Membership to Fertility Friends is 100% free and always will be, sign up today and meet loads of new friends that are going through the same emotions.
Website: http://www.fertilityfriends.co.uk/
Getting Pregnant.co.uk.
Thinking about trying for a baby? Or already started on the quest to get pregnant? Getting Pregnant was conceived to help you conceive!
Website: http://www.gettingpregnant.co.uk/
Genetic Interest Group (GIG)
A national alliance of patient organisations with a membership of over 130 charities which support children, families and individuals affected by genetic disorders.
Tel: 020 7704 3141
Website: http://www.gig.org.uk/
IVF-infertility.com
IVF-infertility.com is a website is designed by infertility specialists primarily for couples who are experiencing difficulty in having a child, and thinking that they might need medical help. They hope to guide you along the path of achieving a pregnancy, and take you step-by-step through the causes, investigations and treatment options of infertility.
Website: http://www.ivf-infertility.com/
Infertility Network UK (I N UK)
I N UK provides practical and emotional support to those experiencing difficulties in conceiving whatever stage of their journey they are at. There is a regional network and local support groups, and the charity also produces factsheets and other information, including a video. They have a telephone advice line, medical advisers and a website with news, forums and information.
Tel: 0800 008 7464
Website: http://www.infertilitynetworkuk.com/
iVillage.co.uk
iVillage.co.uk is a large UK based online community for women. With more than 200 message boards and a Social Networking platform it is a safe and friendly environment to share experiences, gain support, make friends and receive understanding from women in similar situations. iVillage´s boards cover all aspects of fertility, pregnancy, loss and much more. Membership is free and interaction on the boards can be anonymous.
Website: http://www.ivillage.co.uk/boards
May-b-baby.co.uk
A website dedicated to couples going through infertility and assisted conception. The websites aim is to offer support and understanding couples going through the heartache, stress infertility and assisted conception brings. There is an online message board and chat facility which lets you communicate online with other couples going through, IVF, IUI, FET, egg share, surrogacy, adoption, pregnancy and pregnancy loss. There is always someone who will listen and be willing to offer support!
Website: http://www.may-b-baby.co.uk/
Miscarriage Association
The Association provides support and information on pregnancy loss.
Tel: 01924 200799
Website: http://www.miscarriageassociation.org.uk/
More to Life
A national support network providing a support service for people exploring what life without children has to offer - both involuntary childlessness, and those for whom fertility treatment is no longer a consideration.
Website: http://www.infertilitynetworkuk.com/moretolife/
Tel: 0800 008 7464
Multiple Births Foundation
The Multiple Births Foundation provides professional support and information about all aspects of multiple births.
Tel: 020 8383 3519
Website: http://www.multiplebirths.org.uk/
National Childbirth Trust (NCT)
The NCT helps parents to have an enriching experience of pregnancy, birth and early parenthood, providing local support and contacts for social networking. It runs antenatal classes and provides information on maternity issues, breastfeeding and postnatal support, including specialist groups for
Caesareans and miscarriage.
Tel: 0870 770 3236
Website: http://www.nctpregnancyandbabycare.com/
National Gamete Donation Trust (NGDT)
The NGDT was founded as a registered charity in April 1998 in order to raise awareness of, and seek ways to alleviate, the shortage of sperm, egg and
embryo donors in the UK. The NGDT is a central reference point for donors, recipients and health professionals.
Tel: 0845 226 9193
Website: http://www.ngdt.co.uk/
National Institute for Clinical Excellence (NICE)
NICE is part of the NHS. It is the independent organisation responsible for helping patients, health professionals and the public to make decisions about treatment and healthcare.
Tel: 020 7067 5800
Website: http://www.nice.org.uk/
Pink Parents UK
Pink Parents' services to lesbian, gay, bisexual and transgendered families includes information and support to those who would like to have children.
Tel: 08701 273 274
Website: http://www.pinkparents.org.uk/
Project Group on Assisted Reproduction (PROGAR)
PROGAR campaigns in two main areas: for the right of people with fertility difficulties to informed choice and quality of care, including counselling; and for the right of people to have access to identifying information about their genetic origin.
Tel: 0121 622 3911
Website: www.basw.co.uk/progar
Progress Educational Trust (PET)
This UK charity provides information and debate on assisted reproduction and human genetics, promoting discussion among patients, the wider public and professionals on their social, legal and ethical implications. PET holds regular public debates and conferences and produces a free web and email news and comment service, BioNews, with support from the Department of Health.
Tel: 020 7278 7870
Website: http://www.progress.org.uk/
Single Mother
A website for single mothers and those looking at their options or seeking actively to become one.
Website: http://singlemother.typepad.com/
Stillbirth and Neonatal Death Society (SANDS)
SANDS provides support for parents and families whose baby is stillborn or dies soon after birth.
Tel: 020 7436 5881
Website: http://www.uk-sands.org/
Surrogacy UK
A website and message board providing advice on surrogacy in the UK. It was set up by Elizabeth Stringer and Carol O'Reilly, who have been involved in surrogacy since 1994.
Tel: 01531 821889 (10am-2pm)
Website: http://www.surrogacyuk.org/
Twins and Multiple Births Association (TAMBA)
TAMBA provides support for families with twins, triplets or more, and for professionals involved with their care. It has a network of local twins clubs and
specialist support groups, and provides publications and information packs.
Tel: 0870 138 0509
Website: http://www.tamba.org.uk/
UK Donorlink
A pilot voluntary contact register set up to enable people conceived through donated sperm and/or eggs, their donors and half-siblings to exchange
information and - where desired - to contact each other. The register is for anyone over 18 who was conceived with donated sperm or eggs, or who donated in the UK before the Human Fertilisation and Embryology Act came into force.
Tel: 0113 278 3217
Website: http://www.ukdonorlink.org.uk/
Verity
Verity is a self-help organisation for women affected by polycystic ovary syndrome (PCOS) and is dedicated to improving the lives of sufferers.
Website: http://www.verity-pcos.org.uk/
Useful websites
There are many websites that provide information about infertility and opportunities to ask questions and exchange personal experiences with others. A few that patients have mentioned to us are:
http://www.fertilityfriends.co.uk/
http://www.may-b-baby.co.uk/
http://www.gettingpregnant.co.uk/
http://www.ivf-infertility.com/
Let us know of others you find helpful.
The HFEA cannot vouch for the information supplied by other organisations mentioned in this Guide. Nor does the inclusion of such organisations' details in the Guide imply any endorsement by the HFEA.